*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
Very pleased to share my Nature journal article: Medical science must address health disparities amongst different ethnic groups https://lnkd.in/d8X4jBSJ
Congrats Norris!
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
It's now officially accepted in Nature Genomic Medicine! I introduce a new paradigm for investigating sickle cell disease that could bring new biological and therapeutic targets for patients with sickle cell disease. # Sickle for Space # Novel gene-environmental targets
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
Very powerful talk on Invisible Disabilities by Dr. Amrita S.
TEDx Speaker | Wellbeing Consultant | Positive Psychology Coach | Disability Advocate | Portfolio GP |
**Please share this post to raise awareness of Invisible Disabilities** 🎤 Exciting Announcement! 🚀 Dear LinkedIn Friends and Connections, I'm thrilled to share a major milestone with you, I am now officially a #tedxspeaker. After what has felt like an eternity (but is only a month!), my #TEDxtalk has been published! 🌟 This journey has been one of the toughest challenges yet, and I am so very excited to share. For the past 6 months, I've been both excited and apprehensive, as this talk embodies a very real and personal perspective driving my professional mission - to advocate for the unseen. In this talk, I strive to shine a light on an often overlooked dimension of #invisibledisabilities challenging the frameworks and biases that society imposes. I invite you to consider the potential for change when we unmask the strengths and abilities of the marginalised. My #tedxtalk discusses a journey of empowerment where invisible disabilities shatter conventional norms, and empathy unlocks a new-found understanding of the human experience. Everyone has the potential to grow, thrive, and flourish, regardless of their visible – and invisible – abilities and our perceptions of these. I am a strong believer in enabling people to harness their potential, promoting healthier work-life practices, and supporting individuals through periods of transition. Please take a moment to listen to the talk and join the conversation and let me know your thoughts!! Your feedback is invaluable and welcome! Finally, a heartfelt thank you... - To my loved ones, my friends and family who have supported me and offered a safe place when I needed it most - Namrita Sen Green, Debojit Mukherjee, Gurmeet Sen and Paul Green🙂 - To my cheer squad and mentors for always challenging me... you know who you are 🙏🏾 - To my new friends who have been on this amazing #TEDxWarrington #TEDx journey with me. Let's continue to foster positive discussions on discrimination and marginalisation, challenge the current climate, and advocate for equity in personal and professional settings. Together, we can make a difference! 🌍✨ This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Thank you for being a part of this empowering journey! 🙌🏽 https://lnkd.in/eEA7GNFD #disability #diversityandinclusion #TEDxTalk #AdvocateForTheUnseen #IgniteChange #TEDxWarrington #ReflectAndInspire #EqualityChampion #tedxspeaker #posttraumaticgrowth #personalgrowth #acceptance #compassion #advocacymatters
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
The second of my works I will be presenting to ASCAT https://lnkd.in/ez4S9UvU b) Gene-Environmental Influence Of Space And Microgravity On Red Blood Cells With Sickle Cell Disease: The Time Is Now
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
I am delighted to have two first author posters accepted for prestigious ASCAT conference on 25th – 28th October. Thank you ASCAT https://lnkd.in/ez4S9UvU & for the opportunity. The first works on sickle cell disease I will be presenting are: a) Understanding Genome-Wide Mutational Burden In Patients With Sickle Cell Disease: Experience In United Kingdom.
Norris Igbineweka reposted this
Supporting Imperial College's contribution to the United Nations Sustainable Agenda 2030, bringing together partnerships to develop, amplify and support research and education impact
Achieving the #sustainabledevelopmentgoals (SDGs) for #health in many countries in Africa will include addressing #sicklecelldisease (SCD), a chronic non-communicable disorder (NCD). Africa is the epicenter of the disease burden: an estimated 80% of patients live in Africa and more than 300,000 new babies with SCD are born on the continent each year. Historically, health systems in many regions have been ill-equipped to provide optimal preventative and therapeutic healthcare over the life-course of patients with SCD. The result has been high rates of mortality and severe morbidity beginning in early childhood. In this context, the current era of #scientificinnovation holds promise for helping patients, health workers, policy makers, and other stakeholders to make a sustained impact on population health as it relates to SCD. Some of the most significant advances in science have been in #genomics with the completion of the Human Genome Project in 2003 and Gene Editing, with recognition of the latter by the Nobel Prize in 2020 to Jennifer Doudna and Emmanuelle Charpentier. The translation of genomic science to improve health has resulted in clinical trials with cure of sickle cell disease using #genetherapy . This has led to an increase in investment and interest from key stakeholders, particularly the #patientcommunity, as well as discussion to ensure equity and access to these interventions, as well as integration within the existing interventions and #healthsystems. Tanzania convened a sickle cell Session in 2022 at the Science Summit at UNGA click this link for more details. For 2023, this Thematic Session will focus on four areas: (1) State of health of Sickle Cell Disease at national, regional, and global level. (2) Progress in Science and Technology with impact on improving health and curing sickle cell disease. (3) Partnerships in health and science to integrate and leverage progress in different sectors. (4) science policy and science investment that is required to ensure universal access to research ad health. The main goal is to develop strategies to improve health in sickle cell disease through the generation and application of scientific knowledge. Join Prof. Julie Makani at Science Summit at United Nations General Assembly (UNGA) with SickleInAfrica Consortium Muhimbili University of Health and Allied sciences and Imperial College London on Sept 21st: https://lnkd.in/eYJ8AJek
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
I am honoured to announce that I was recently awarded a Springer Publishing Book contract for the book entitled ‘Handbook of Sickle Cell Disease’ aimed at providing additional Sickle Cell Disease education to health professionals to help to address existing disparities in the management of Sickle Cell Disease. I am doubly honoured and pleased to have the most amazing co-editors to work with me on this vision – Dr Kate Gardner, Dr Rachel Kesse-Adu & Prof. Julie Makani. We will also be selecting an incredible variety of contributing authors aligning with this book’s vision which will be ready for release Aug 2024. Watch the space…
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
The month of October is approaching, and so always an opportunity for self-reflection and to appreciate the journey. I grew up in Peckham – not the greatest of areas socio-economically. Poverty, gang violence, and deprivation all hallmarks of the area at the time. But it did also have community spirit, and I, determination. The picture below represents a pivotal moment in my educational journey just after the Damilola Taylor murder in Peckham at the turn of the millennium – receiving a scholarship from HSBC to leave a comprehensive state secondary school and attend a private sixth-form college. I laugh today, because back then all I knew to wear was a tracksuit, even to collect the award at a meeting with the presenter who is so wonderfully dressed in regal-like attire! I have had many positive and supportive teachers who have contributed to where I am now. However, I still remember being told by one that I did not have what it takes to study medicine or any science-based subject – let alone practice both medicine and science at the same time, or even discover genes for cancer! We can certainly improve as a society by taking care of each other, learning to make less ill-informed, dismissive judgements at face value, and appreciating and nurturing each other’s qualities. We are only as strong as the least of us in society. To the younger generation coming through, keep pushing. If you fall, pick yourself up and try again.
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
Very pleased to share my latest publication. My work on fetal hemoglobin (HbF) genetics in patients with blood cancers, has allowed for the discovery of new genes with potential implication in certain blood cancers. This small, early preliminary work will hopefully help contribute to allowing for better predictors of treatment response, and targeted therapies for these disease groups in the future. It will be officially published in Annals of Hematology and Oncology on 22nd Sept 2022.
*Clinical Research PhD Fellow - Imperial College/Oxford University Fellowship *Haematology Registrar *Fulbright Scholar
Pleased to be giving this talk. Current and future Sickle Cell Disease treatments. https://lnkd.in/d3gyeUHj
MD, PhD, Consultant Haematologist with special interest in BMT & cellular therapies.
2yVery well done, Norris! 👏